Protection &
Advocacy Inc.

Advancing the rights of Californians with disabilities

 

ADVOCACY PLAN 2008-2012

 

Implementing Rights, Addressing Wrongs

 

Protection & Advocacy, Inc. (PAI)

www.pai-ca.org

 (800) 776-5746

 

Adopted by PAI’s Board of Directors

September 2007

 

Table of Contents

 

PAI Vision Statement

PAI Mission Statement

Introduction

Principles

Stop discrimination, end institutionalization, and increase community living choices

Eliminate abuse and neglect and improve quality of care

Increase access to benefits, services, and health care

Increase access to education, housing, transportation, and employment

Make sure the autonomy, preferences, and choices of people with disabilities are respected

Increase Culturally Competent and Geographically Accessible Services

Enforce Rights

What We Do

Examples of Problems PAI Can Help With

Whom We Help

How to Get Help

Strategic Goals

Diversity and Outreach Goals

Public Policy, Communication and Public Education Goals

Goals to Expand, Enhance, and Improve the Effectiveness of PAI Services

Advocacy Principles, Priorities, and Goals

Advocacy Principles

Advocacy Priorities

Advocacy Goals

 

PAI Vision Statement

 

PAI’s vision is a barrier free, inclusive world that values diversity, culture, and each individual.

 

In this world all people with disabilities have:

Equality, 

Dignity,

Power,

Freedom of choice,

Independence, and

Freedom from abuse, neglect, and discrimination. 

 

They have quality, culturally responsive, safe, affordable, accessible:

Housing,

Education,

Healthcare,

Technology,

Transportation, and

Individual and family supports that they choose and direct.

 

People with disabilities have the right to family, social, and intimate relationships.  They are financially secure, can make life choices, and have opportunities for satisfying work, recreation, spiritual lives, and community service.

PAI Mission Statement

 

Advance the rights of Californians with disabilities.

 

Introduction

 

Excluding people with disabilities from the mainstream of community life has been a civil rights issue in California and the rest of the country since at least the early 1970’s. Laws have been passed to advance, enhance, and protect those civil rights.  But people with disabilities still face barriers such as prejudice, discrimination, and indifference. These barriers continue to limit the rights and opportunities of Californians with disabilities. This is unacceptable in the 21st century.

 

Over the next five years, PAI will continue to advocate with and for people with disabilities. We will work together to fight discrimination, promote autonomy and choice, end abuse and neglect, and increase access to programs and services that respect each client and his or her unique needs and culture.

 

Principles

 

Our work will be guided by the following principles:

Stop discrimination, end institutionalization, and increase community living choices

 

·       Stop discrimination and work for equal opportunities

 

·       End institutionalization and increase access to culturally appropriate and safe community living with supports chosen by the person with a disability

 

Eliminate abuse and neglect and improve quality of care

 

·       Eliminate abuse and neglect

 

·       Improve the quality of care and treatment in facilities and protect rights, while working towards the goal of returning to the community

 

Increase access to benefits, services, and health care

 

·       Increase and maintain access to government benefits

 

·       Increase and maintain access to public and private health programs

 

·       Increase and maintain access to effective, client-centered, voluntary community mental health services

 

·       Make sure that people with developmental disabilities receive Lanterman Act services based on their needs and choices

 

Increase access to education, housing, transportation, and employment

 

·       Increase children’s and youth’s access to appropriate education services in the most integrated environment

 

·       Increase the rights of people with disabilities to have work opportunities consistent with their interests, abilities, and needs

 

·       Increase the rights of people with disabilities to housing they can use and afford

 

·       Increase the availability of adequate, accessible transportation no matter where they live and remove transportation barriers

 

Make sure the autonomy, preferences, and choices of people with disabilities are respected

 

·       Increase protections for the preferences, opinions, bodily integrity, and privacy rights of individuals with disabilities

 

·       Promote the rights of people with disabilities to direct their own lives

 

·       Expand services and protections for parents with disabilities

 

·       Increase participation by people with disabilities on local and state policy-making bodies and boards

 

·       Make sure that voting systems and processes are accessible and barrier free

 

Increase Culturally Competent and Geographically Accessible Services

 

·       Make sure that systems value disability, diversity, culture, and each individual

 

·       Make sure that there is equal provision of services in all geographic areas

 

Enforce Rights

 

·       Make sure that there is access to courts, administrative agencies, and legal services so that individuals with disabilities can defend and enforce their rights

 

What We Do

1.       Tell people with disabilities about their many legal, civil, and service rights,

2.       Provide technical assistance, training, publications, and advocacy support for Californians with disabilities, their families, and representatives,

3.       Advocate to make sure that laws benefit Californians with disabilities,

4.       Investigate complaints about serious physical or sexual abuse and neglect-related deaths in institutions,

5.       Outreach to traditionally underserved ethnic and disability communities,

6.       Provide peer self-advocacy services for people with psychiatric or developmental disabilities,

7.       Provide patients’ rights advocacy for state psychiatric hospital residents, and technical assistance and training for county advocates,

8.       Provide rights advocacy for clients with developmental disabilities who are receiving services at regional centers,

9.       Bring impact litigation and act as amicus curiae in disability- related cases, and

10.     Represent individuals based on PAI’s priorities and case selection criteria.

 

Examples of Problems PAI Can Help With

 

PAI helps people with disabilities to solve disability-related problems.  If you have a disability and qualify for services, PAI can help you with problems like:

 

·       Rights to basic support, personal care, therapy, and health care – like Supplemental Security Income (SSI), In-Home Supportive Services (IHSS)

 

·       Discrimination in housing, transportation, employment, and access to public and private programs and services

 

·       Abuse, neglect, and rights violations in an institution

 

·       Least restrictive environment, dignity, privacy, choice, and other basic rights

 

·       Special education rights

 

·       Mental health and support services that provide individualized treatment

 

·       Regional Center eligibility and services that promote independence – such as supported living and family supports

 

·       Voting registration, vote casting, and accessible polling places

 

·       Access to technology – like communication devices and power wheelchairs

 

If we can’t be of direct assistance, we refer people to other sources of help.

 

PAI also takes its services into the community, wherever children, youth, and adults with disabilities live or go to school or obtain services.

 

Whom We Help

 

PAI provides advocacy help for Californians with disabilities.  You could be eligible for PAI services if:

 

·       You have a developmental disability

 

·       You are a regional center consumer

 

·       You have a psychiatric disability or emotional impairment

 

·       You are a patient in a state psychiatric hospital

 

·       You have a physical, learning, or sensory disability

.

·       You have a traumatic brain injury

 

·       You need access to technology that you believe may help you live a fuller, more independent life

 

·       You receive SSI or SSDI and need help with employment issues or keeping your benefits when you return to work

 

·       You have questions about your right to vote

 

In deciding whether PAI can represent you directly, PAI will consider:

 

·       The merits of your claim

 

·       Your ability to advocate for yourself

 

·       Other advocacy sources you could use

 

·       Whether your problem falls within one of PAI’s priority areas

 

·       Availability of PAI resources

 

If we decide that we can not help you and you disagree, you can file a grievance.

 

Each of PAI’s grants and contracts has specific service eligibility criteria.  If you want a copy of these criteria, the complete case selection criteria, or a grievance form call (800) 776-5746.

 

How to Get Help

 

To ask for PAI services anywhere in California, call PAI’s toll free number:

 

1-800-776-5746 (Voice)

1-800-719-5798 (TTY)

 

You can also get help by contacting one of PAI’s regional legal offices:

 

Sacramento Regional Office

916-488-9950 (Voice)

1-800-719-5798 (TTY)

 

Bay Area Regional Office

510-267-1200 (Voice)

1-800-719-5798 (TTY)

 

Los Angeles Regional Office

213-427-8747 (Voice)

1-800-719-5798 (TTY)

 

San Diego Regional Office

619-239-7861 (Voice)

1-800-719-5798 (TTY)

 

If you are a regional center client, you may ask for help from the Office of Clients’ Rights Advocacy (OCRA).

 

Office of Clients’ Rights Advocacy

1-800-390-7032 (Voice)

916-575-1615 (Voice)

1-877-669-6023 (TTY)

 

If you are a patient at a state psychiatric hospital you may ask for help from the Office of Patients’ Rights (OPR).

 

Office of Patients’ Rights

916-575-1610 (Voice)

 

You may also access other advocacy services by contacting our Advocacy Unit.

 

Advocacy Unit

 

Legislation and Public Information Unit (LPIU)

916-497-0331 (Voice)

 

Communications/Media

510-267-1200 (Voice)

1-800-719-5798 (TTY)

 

Peer Self-Advocacy Units

916-488-7787 (Voice)

1-800-776-5746 (Voice)

916-488-7715 (TTY)

 

Collaborative Projects

916-488-7787 (Voice)

1-800-776-5746 (Voice)

916-488-7715 (TTY)

 

Strategic Goals

 

Diversity and Outreach Goals

Staff Diversity Goals

 

As a disability advocacy organization, PAI is committed to implementing the principles it advocates in its work place including employing people with disabilities, implementing model employment practices including reasonable accommodations and accessibility throughout the workplace, and involving people with disabilities in decision making at all levels of the organization.  To demonstrate its commitment, PAI’s Board of Directors adopts the following time-limited goals to augment its merit-based selection and retention policies:

 

·       The majority of staff employed by PAI should be individuals with disabilities.

·       The staff of each office and unit should reflect the disability diversity of the communities they serve.

·       People with disabilities should be employed at all levels of the organization including directors, managers, advocacy staff, administrative, and support staff.

 

California is the most ethnically diverse state in the nation.  PAI is committed to ensuring that it is able to effectively serve individuals with disabilities from ethnic and language distinct communities.  PAI is committed to employing people of color, including people of color with disabilities, and implementing model employment practices and involving people of color in decision making at all levels of the organization.  To demonstrate its commitment, PAI’s Board of Directors adopts the following time-limited goals to augment its merit-based selection and retention policies:

 

·       The staff of each office and unit should reflect the ethnic and language diversity of the communities they serve.

·       People of color should be employed at all levels of the organization, including directors, managers, advocacy staff, administrative, and support staff.

·       Increase the number of multilingual staff, particularly those who speak Spanish and Asian languages, based on the needs of the communities served by PAI offices and units.

 

PAI values diversity of life experiences and believes that employing individuals whose life experiences are similar to those of PAI’s clients will make its advocacy more effective. We seek out people with familiarity or contacts with homelessness, the criminal justice system, people with substance abuse issues, or the Lesbian Gay Bisexual Transgender, and Intersex (LGBTI) community.

 

To implement these time-limited goals, each office and unit will develop periodic, time-limited Diversity Plans.

 

PAI staff are our most valuable resource and make sure that PAI is able to effectively serve Californians with disabilities.  In order to make sure that PAI is able to recruit and retain a highly qualified, diverse workforce, PAI will strive to provide competitive salaries and benefits.

 

Board Diversity Goals

 

PAI’s Board is committed to ensuring that Board reflects the diversity of California.  As a disability rights organization, at least a majority of the Board shall be comprised of people with disabilities and members with disabilities will have opportunities to participate in Board leadership positions.  In addition, every effort shall be made to make sure that appointments reflect the socioeconomic, ethnic, geographic, and disability diversity of the State.  

 

The Board will include public members on various Board committees as a way of ensuring diverse perspectives are heard.  The Board will identify ways to include youth with disabilities in Board committee work.

Community Outreach Goals

 

PAI is committed to ensuring that its services are accessible to individuals with disabilities from ethnically and language distinct communities and that its services are provided in a disability and culturally competent manner.  

 

To demonstrate its commitment, PAI’s Board of Directors adopts the following goals:

 

·       Make sure that the provision of advocacy services reflects the language, and ethnic diversity of each office and unit service area.

·       Target advocacy services to individuals from communities that are traditionally underserved by the office or unit.  Underserved communities include: ethnic and language distinct communities, immigrant communities, rural and low-income communities, people who are homeless, individuals from the gay, lesbian, bisexual, transgender and intersex community, individuals from distinct disability communities, and children and youth in the foster care or juvenile justice systems.

 

To implement these goals each office and unit will develop periodic Outreach Plans.

 

Public Policy, Communication and Public Education Goals

 

Advance our Advocacy Principles by:

Public Policy Advocacy

 

·       Developing an annual legislative platform

·       Sponsoring or co-sponsoring select legislation or co-sponsoring initiatives

·       Advocating on select bills, initiatives, and budget issues

·       Strengthening and increasing the effectiveness of our coalition building activities with the disability rights movement and other civil rights, social justice, and legal services groups

·       Participating in task forces, ad hoc committees, meetings, and coalitions

·       Promoting PAI’s disability rights expertise to the community at large

Communication

 

·       Promoting positive images of people with disabilities through communications strategies including the media and PAI’s website

·       Ensuring that media and communications strategies are part of all aspects of PAI’s work including legislation, litigation, advocacy, and communications

·       Strengthening PAI’s communication tools and strategies including PAI’s website and the use of other internet tools in order to tell others about our work and advance our work.

 

Public Education

 

·       Informing and educating people with disabilities about PAI services by:

 

o      Publishing an Annual Report

 

o      Making information about PAI available in other languages

 

·       Informing and educating people with disabilities about laws, policies and services that impact their rights by:

 

o      Producing materials for people with disabilities and increasing the accessibility of those publications by writing at appropriate literacy levels, translating materials into languages other than English, and creating alternative formats

 

o      Providing training and other education activities for people with disabilities, their families, their advocates, and organizations which target traditionally underserved communities

 

Goals to Expand, Enhance, and Improve the Effectiveness of PAI Services

 

·       As resources become available, develop periodic plans which will enable PAI to:

 

o      Expand our current legal advocacy, peer/self advocacy, clients’ rights and patients’ rights advocacy, and other advocacy services.

 

o      Expand services to more remote and geographically underserved communities.

 

o      Increase our ability to respond to emerging issues.

 

o      Evaluate and enhance current methods of providing and administering our services.

 

Advocacy Principles, Priorities, and Goals

 

Advocacy Principles

 

Our advocacy will be zealous, dedicated, effective, creative, innovative, and daring.

 

We will take on issues of importance to the disability community even when the outcome is uncertain.

 

We will integrate a variety of advocacy approaches in all of our work, including self-advocacy, legal, non-legal, media, public policy, legislative, and investigatory.

 

We value diversity.  Our staff should reflect the ethnic, language, and disability diversity, and demographic diversity of California: rural, age, sexual orientation, a range of different life experiences that reflect the disability community.

 

Our advocacy efforts will affirmatively address the needs of traditionally underserved and under-represented communities through partnership with such communities.

 

Our advocacy will be of high quality regardless of the type of service, the nature of the problem or who the client is.  We will be honest, prepared, truthful, and informed.

 

All staff is expected to contribute and their contributions will be valued and respected.

 

When representing individuals:

 

·       We will do what the client wants – not what we or others think is best,

 

·       We are honest about our limitations, values, resources, and the likely outcome,

 

·       The client chooses the outcome and the method of achieving the outcome and the client’s choices will be treated with respect, and

 

·       The client actively participates in every stage of the process. 

 

Advocacy Priorities

 

PAI has identified the following priority areas for the next five-year period:

 

          Abuse and Neglect

 

          Discrimination

 

          Benefits

 

          Education for Children and Youth

 

          Lanterman Act

 

          Mental Health