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5013.01 Protection & Advocacy, Inc. Telephone: Toll Free/TTY/TDD: IHSS FAIR HEARING Introduction This information packet is intended to help you represent
yourself and others in fair hearings when there is a dispute about the number
of In-Home Supportive Services (IHSS) or Medi-Cal personal care services ( Doing a self assessment will help you figure out how many hours you think you need and what to point out to the worker who does the assessment. This guide does not cover everything about how the IHSS program works. For more information about the IHSS program, call PAI and ask for What About IHSS?, PAI Publication number 5168.01. Please feel free to call us if you have questions about other areas this guide does not cover: relationship between Veteran's Aid and Attendance and IHSS, unmet needs, respite care, "overpayments", etc. There are four parts to the packet. 1. The first part explains how to prepare for an assessment, how to ask for and prepare for a hearing, and what to expect at a hearing. 2. The second part is a collection of reasons IHSS recipients have used to explain why they need more IHSS time. 3. The third part contains fact sheets on specific IHSS services: IHSS for children, Protective Supervision, Paramedical Services, and IHSS for people with psychiatric disabilities. 4. The fourth part is a worksheet for figuring out the hours you need.
I. THE ASSESSMENT AND FAIR HEARING PROCESSA. The assessment
When you first apply for IHSS, at least once per year, and any time you request it, you will have a county assessment. The county worker will come to your home and determine which IHSS services you are eligible for and how many hours you will receive per month. The county should do the assessment within 30 days of your request. 1. How to Measure IHSS Need a. Statutory and Regulatory Standard The general standard for measuring individual need for IHSS services (assuming the person with a disability is unable to perform the needed services because of his or her disability)[2] is set out in Welfare and Institutions Code Section 12300. The person with a disability is entitled to receive the services needed to enable him or her (1) to remain safely in his or her own home or in the abode of his or her own choosing, and/or (2) to establish and maintain an independent living arrangement. The time that will be authorized is based on the time it takes your provider to do the tasks authorized. No time will be authorized for services that are solely for the "comfort" of the IHSS recipient. The maximum number of hours is 283 per month. b. State Time-for-Task Guidelines There are certain state “time-for-task" guidelines: i. domestic services, 6 hours a month; ii. laundry if facilities are in the building, 1 hour per week; iii. laundry if you have to go outside the building, 1-1/2 hours per week; iv. grocery shopping, 1 hour per week; v. other errands, 30 minutes per week. Typically, the time-for-task guideline will be reduced if there is more than one person in the household. For instance, in a family of four the disabled person's pro rata share of the domestic services would be 1.5 hours per month. The regulations recognize that time-for-task guidelines may be used only if appropriate for meeting a recipient's individual circumstance. Part II of this packet provides illustrations about when the guidelines are not appropriate because of individual circumstances. c. Diary Log A key part of preparing for a fair hearing or for an
evaluation by the 2. Doing Your Own Assessment Before the hearing, complete the IHSS worksheet in section IV. The worksheet, like the County assessment form, is based on a one-week period except for the entry for domestic services which is for a month. Hours are calculated in 10ths: .05 = 03 minutes .40 = 24 minutes .80 = 48 minutes .08 = 05 minutes .42 = 25 minutes .83 = 50 minutes .10 = 06
minutes .45 = 27 minutes
.85 = 51 minutes .15 = 09
minutes .50 = 30 minutes
.90 = 54 minutes .17 = 10
minutes .55 = 33 minutes
.92 = 55 minutes .20 = 12
minutes .58 = 35 minutes
.95 = 57 minutes .25 = 15
minutes .60 = 36 minutes 1.00
= 60 minutes .30 = 18
minutes .65 = 39 minutes 2.00
= 120 minutes .33 = 20
minutes .70 = 42 minutes 3.00
= 180 minutes .35 = 21
minutes .75 = 45 minutes 4.00
= 240 minutes 5.00 =300 minutes We find it easier to do the calculations if you count by minutes and then translate the hours and minutes into tenths. For instance, if the time assisting on and off the commode and holding while on the commode to prevent falls, plus related tasks such as hand washing, averages 6 minutes each time, and the usual frequency is 5 times a day on weekdays when away at school or at training program and 7 times a day on weekends, the weekly time would be (5 x 6 min. x 5 days) + (7 x 6 min. x 2 days) = 234 minutes = 3 hours 54 minutes = 3.9 hours. Finally, on a separate piece of paper you need to write down the reasons why you believe you need more IHSS time. To help you, section II of this packet is a listing of "Reasons Why More IHSS Time Is Needed" that we have seen in individual cases. Some of these reasons may apply in your case. 3. Getting Ready for the The County worker's purpose for the home visit is to determine what an IHSS recipient or applicant can or cannot do for himself or herself and, therefore, what services are needed and the time necessary to perform those services. Your job is to help the County worker understand all your care problems and special care needs and what they mean in terms of time. It is important to be frank and open. Do not minimize your disability problems and care needs because you may end up not getting the hours you need. Even though you may feel embarrassed doing so, it is important to explain things fully so that the County worker understands your situation. Before the You should be prepared to explain how you determined the hours needed, particularly if there are differences between what the County authorized before and what you believe you need now. As part of the County's evaluation process, your treating physician will be sent a form asking for information about your capacity for self-care, your functional abilities/disabilities, and — relevant to a determination of the need for protective supervision — your mental condition. If you need paramedical services, a paramedical form will be sent to the treating physician. You should alert the clinic or physician's office that it is coming so that you can participate in the form completion. 4. Documenting Special Needs Get documentation verifying special needs — for instance,
a note from your physician explaining that you need a dust-free environment
because of allergies or pulmonary/respiratory problems, a note verifying bowel
and bladder problems, or a need to have bed linens changed more than twice a
month. If you need range-of-motion
exercises or other physical therapy, or shots, or catheterization, or
suctioning, etc., get the forms from your 5. IHSS versus Medi-Cal Personal Care Services Program (PCSP) IHSS and PCSP operate as a single program. The Medi-Cal statute that covers Medi-Cal personal care services says that IHSS rules are to be followed when authorizing services. Welf. & Inst. Code § 14132.95(i). When people say “IHSS” they usually mean both IHSS and the Medi-Cal PCSP. Most people’s services are covered by the Medi-Cal PCSP where the federal government pays for half the cost of services – just as the federal government pays for half the cost of other Medi-Cal services. If the services are being provided by the spouse or the parent of a minor, or if there is advance pay, the services are covered under just IHSS because of federal Medicaid rules. Protective supervision services are also covered only under IHSS. There is a difference only in limited circumstances: If someone has income too high to qualify for SSI but can qualify for Medi-Cal with no share of cost under the Aged & Disabled Federal Poverty Level Program or as a “Pickle”, that person probably would have a share of cost if he or she elected to receive advance pay. If someone qualified for Medi-Cal under one of the Nursing Facility Waivers or under the Waiver for Persons with Developmental Disabilities, that person would not qualify for services provided by a spouse or, if a minor, a parent. 6. When the Person with a Disability Is Married If the person with a disability is living with a spouse, the spouse or anyone else may be the paid IHSS provider of non-medical personal services (see category 4 on the enclosed worksheet form) and paramedical services. If the spouse leaves full-time employment or is prevented from obtaining full-time employment because no other suitable provider is available and, as a result, there is a risk of inappropriate, out-of-home placement or inadequate care, the spouse also may be paid to provide protective supervision and to accompany the disabled recipient as necessary to medical appointments. If the spouse is not able or available, these and the other IHSS services may be provided by others. "Not available" includes time when the spouse is out of the home because of work or for other necessary reasons, or when the spouse is sleeping or meeting the needs of other family members. 7. "Severely Impaired" To determine whether you qualify as a "severely impaired" recipient, add up the "essential" service categories labeled on the worksheet with an asterisk (*). If they total 20 hours or more a week (including services not provided through IHSS)[3] you qualify as severely impaired. If you are severely impaired, you are entitled to (a) secure your own IHSS or Medi-Cal Personal Care Services provider even in contract agency counties and (b) advance payment so that you may pay your workers rather than waiting for the state computer to pay them afterwards. If you have been determined to need protective supervision, how many protective supervision hours you receive will depend on whether or not you are “severely impaired.” If you are determined not to be severely impaired and you receive Medi-Cal personal care services, you will receive up to 195 hours of protective supervision a month provided your protective supervision hours and your Medi-Cal personal care services hours do not exceed 283. If they do, your protective supervision hours will be reduced so the total is not more than 283 hours. If you are not eligible for any Medi-Cal personal care hours but only IHSS hours because your provider is your spouse or your parent if you are a minor or you receive advance pay, then your total hours cannot exceed 195 hours a month. If you are determined to be severely impaired, then your protective supervision hours will be the difference between your other hours (whether or not under Medi-Cal or the residual IHSS program) and 283 hours. B. The fair hearing process
1. How to Ask for a Hearing If you are challenging a reduction in hours or a termination of services, you must request a fair hearing within 10 days of the date on the cutback notice, or before the reduction goes into effect, in order to continue receiving all your hours until the hearing is over. If you believe you have not been allowed enough hours, you may challenge the county’s decision at any time. However, the Administrative Law Judge or ALJ may only give you an increase in hours for up to the three months prior to your hearing request. If you ask for a hearing April 15, the ALJ can go back to January 1. (You always have the right to ask your worker to reassess you to see if he or she agrees you need more hours. If your worker agrees, then you do not need to go to a hearing.) To request a hearing: Fill out the back of the notice of action form and send to the address indicated, or Send a letter to: IHSS Fair Hearing Give your name and state identification number and say that you want a fair hearing because you do not believe you have been allowed the hours you need. If you need the hearing to he held in your home, include that in your request. If you need an interpreter or if you need an interpreter for someone who will be testifying (such as your IHSS worker), include that also in your request. You can fax the letter (in addition to mailing it) to 916-229-4110. OR Call the toll free number at 800-743-8525 to request a fair hearing. 2. Information You Need to Get Started Get together information about how the
a.
Ask your worker for a copy of the latest needs
assessment forms. These county forms
will include notes about why hours were or were not authorized. Also ask for a copy of the most recent b. Ask for a copy of the sheets in your file where notes were made about contacts and visits with you over the last year. c. Ask your IHSS worker for a copy of the County's time-for-task guidelines. Remember, time-for-task guidelines may not be used for personal care tasks. d. Ask your worker for copies of any doctor or medical reports in your file and for copies of any paramedical forms. ♦ ♦ ♦ Note: Welf. & Inst. Code § 10850(c)
authorizes Manual of Policy & Procedures ♦ ♦ ♦ e. If IHSS reduced your hours, ask your IHSS worker for copies of the regulations listed on your reduction notice. f. The IHSS regulations are in the Department of Social Services’ Manual of Policy and Procedures. If you have access to the Internet, you can find the IHSS regulations at www.dss.cahwnet.gov/ord/CDSSManual_240.htm. There are four entries for the Division 30 regulations. Skip the first entry. The IHSS regulations start about 5 pages into the second entry, continues through the third entry, and finishes up in the fourth entry. You also can get the All-County letters at www.dss.cahwnet.gov/lettersnotices/AllCountyL_542.htm. All-county letters are directives the state Department of Social Services sends to the counties. The letters cover a lot of programs; only a few of the letters will be about IHSS. 3. After you file an appeal, you will receive from the state information about your hearing rights and telling you the address and phone number of the County appeals worker, the person who will represent the County at the hearing. Your IHSS file is in that office. Many appeals workers try to resolve a dispute without a hearing. The appeals workers are often more experienced and knowledgeable than the people you've dealt with in the local office. The appeals worker may call you about a "conditional withdrawal" so that a new assessment can be done. If you agree to a conditional withdrawal of your appeal, you have a right to have the hearing rescheduled if you disagree with the new assessment or a decision not to authorize retroactive benefits. 4. You are entitled to the County's statement of position two business days before the hearing. If your hearing is on Friday, you are entitled to the position statement Wednesday morning. (You are entitled to look at your file at any time whether or not you have a hearing pending. See the note above under paragraph 2.) The County's statement of position will help you identify other evidence and witnesses you may need. If you do not get a copy until just before the hearing, you can ask to have the record left open to submit additional evidence (such as letters or statements) to respond to any statement in the County's position paper. Even if you get the County's statement of position in time, you may still ask to have the hearing record left open so that you may submit additional evidence. 5. At the Hearing The County goes first and says why your hours were cut or why you should not have the additional hours you believe are needed. The hearing will involve the presentation of evidence (testimony
by witnesses, letters, diary log, medical reports) about your needs in the
service category areas where you and the county disagree. The evidence should explain what you need,
how long it takes to provide the service, the reason you need more time than
that set out in the assessment or the County guidelines, and what risks you may
be exposed to if you do not receive the level of services requested. IHSS fair hearings are informal. The important thing is to explain why more
time is needed. The best evidence is from the people who provide you care and who kept
a diary record of the time it takes. Witnesses may include — in addition to the IHSS recipient — past and present IHSS providers, regional center counselor, friends and family, etc. For each witness, list the points you want that witness to make and cross off each point as it is made. For more information about the hearing process, visit the website of the State Hearings Division at www.dss.cahwnet.gov/shd/default.htm 6. Getting Help with the Hearing For more help, call the regional center (if the IHSS recipient is a client), an independent living center, a legal aid program, senior advocacy program, the PAI toll free number (800) 776-5746, or the Western Law Center for Disability Rights (213) 736-1031. To find out the telephone number of the senior advocacy program in your area, call your county office on aging or the State Department of Aging at (800) 510-2020. If the county is seeking to reduce your hours or to eliminate a service (such as protective supervision), the county has the burden of showing how you have improved or how changed living circumstances mean you need fewer hours. Call PAI to receive a copy of a memo describing the county’s burden. II. FACTORS OR REASONS INDICATING WHY MORE IHSS HOURS
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